The week of September 15th in Washington, DC was an extraordinary journey of advocacy and awareness for childhood cancer.

We are thrilled to share some groundbreaking news that marks a significant step forward in the fight against DMG. The FDA has granted accelerated approval for ONC201 (now Modeyso™) for the treatment of recurrent H3 K27M-mutant diffuse midline glioma (DMG), including DIPG. This is the first-ever FDA-approved therapy for this devastating disease, and it would not have been possible without your support. Your belief in our mission and your unwavering generosity fueled the fundin

Big News for Childhood Cancer Awareness! 🎗️ We are thrilled to share that California Resolution SR-53, co-authored by Senator Dave Cortese and California Senator Susan Rubio, was officially passed on August 25th, declaring September 2025 as Childhood Cancer Awareness Month in California. Childhood cancer remains the leading disease-related cause of death among children in the U.S., a reality we cannot ignore. By passing this resolution, California is taking a meaningful step

On February 28th, I was on Capitol Hill alongside dedicated childhood cancer families, survivors, and advocates as part of...