Resources
Our foundation supports DIPG DMG patient families through the PBTF's Butterfly Fund. Over the last 5 years the program has supported more than 170 families.
Some of the household expenses covered include:
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Rent and mortgage payments
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Utility bills: electric, gas, water, trash service, phone or internet
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Car loan or insurance payments
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Travel expenses associated with treatment including:
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Hotel or temporary housing
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Gas cards Meal cards
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Funeral expenses
We understand firsthand the devastation a DIPG diagnosis brings to families. Navigating the next steps, exploring treatment options, and accessing trusted resources are crucial during this time. That's why the Mithil Prasad Foundation chose to become a funding partner for the My DIPG Navigator program. This initiative offers one-on-one support to DIPG and DMG patient families through qualified nurses, ensuring they receive personalized guidance at no cost.
When a child is diagnosed with any disease, one of the first actions families take is to seek second opinions. We understand the disbelief and urgency that accompany a DIPG or DMG diagnosis. Families naturally want confirmation and the best possible advice. To ensure they receive insights from top clinicians and researchers specializing in DIPG, we support the National DIPG DMG Brain Tumor Board. This initiative offers treating providers patient-centered advice on innovative treatment options and clinical trials. The Mithil Prasad Foundation is proud to be a funding partner of this initiative through DDRFA, providing this invaluable service to patient families at no cost.
A resource hub for DIPG DMG patients at any stage in their journey, new to the fight, in the fight or fighting for others. Our foundation along with three other foundations contributed from lived experience to put together resources that may help the families.