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About DIPG
Diffuse Intrinsic Pontine Glioma (DIPG) are highly aggressive and difficult to treat brain tumors found at the base of the brain. They are glial tumors, meaning they arise from the brain's glial tissue—tissue made up of cells that help support and protect the brain's neurons. These tumors are found in an area of the brainstem (the lowest, stem-like part of the brain) called the pons, which controls many of the body’s most vital functions such as breathing, blood pressure, and heart rate.
-- danafarberbostonchildrens.org
"DIPG: A brief definition and history" by Dr. Nick Vitanza
DIPG Statistics
#1
Deadliest Pediatric Brain Tumor
Deadliest Pediatric Brain Tumor
400
Children affected every year in US
Children affected every year in US
10,000
Children affected every year worldwide
Children affected every year worldwide
700,000
Potential years of life lost per year
Potential years of life lost per year
7
Years, median age of children diagnosed
Years, median age of children diagnosed
9
Months, median survival time
Months, median survival time
60
Years, with the same prognosis, no survivors
Years, with the same prognosis, no survivors
0.07
Percent of federal cancer fund for DIPG
Percent of federal cancer fund for DIPG
Join us to Amplify DIPG Awareness
- Social Media Campaign: Utilize the power of social media to raise awareness about DIPG. Share informative posts, personal stories, infographics, and videos. Use hashtags such as #DIPGAwarenessDay and #CureDIPG to amplify our message.
- Educational Events: Provide us avenues to educate the public about DIPG. We can help you organize webinars, panel discussions, or workshops with medical professionals, researchers, and DIPG families.
- Contact Legislators: Reach out to local, state, and national representatives to advocate for increased funding and support for DIPG research. We will help you share personal stories and statistics to emphasize the urgency of finding a cure for this devastating disease.
- Fundraising Events: Join our fundraising events, such as annual gala in December every year, to raise funds for DIPG research patient support. Encourage your community members, friends, and colleagues to contribute to the cause.
My DIPG Navigator
Are you or someone you know is diagnosed with DIPG/DMG? We know first hand how overwhelming it is to be thrust into this horrible disease. Many foundations, including ours has partnered with Chad Tough Defeat DIPG Foundation to fund My DIPG Navigator. This free service provides dedicated nurse navigators who offer reliable information to help families understand and manager care for their children.
DIPG Resources
Basic Science understanding of DIPG
Immunotherapy for DIPG
Convection-Enhanced Delivery for DIPG
Consortiums working on DIPG clinical trials
Gift From A Child
When a child’s life ends too soon, donating tissue is a way for the child and family to take a final stand against cancer. Tissue donation is a contribution that improves outcomes for children with brain cancer that only families can make.
