Awareness and Advocacy
The first time we encountered the term D.I.P.G. was when Mithil's doctor mentioned it in response to concerns about his unsteady gait. Until that moment, we were unfamiliar with Diffuse Intrinsic Pontine Glioma (DIPG) and unaware of the devastating implications of this diagnosis. This experience highlighted the urgent need for broader awareness of DIPG, so that it isn't only recognized in the context of a child's diagnosis. Consequently, raising awareness about DIPG has become integral to our mission. Educating the public about this terminal pediatric cancer is essential to fostering a compassionate community determined to improve patient outcomes.
Want to spread awareness about DIPG?
Over the past decade, significant progress in childhood cancer research and treatment can be attributed to the tireless efforts of community-driven patient advocacy groups. Despite DIPG being classified as a rare disease, it claims the lives of approximately 400 children in the U.S. each year—averaging more than one child per day.
At MPF, we advocate for increased funding and resources for childhood cancer at both state and federal levels. By affiliating with many advocacy groups, we amplify our collective voice to drive meaningful change.
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There are many ways to amplify our advocacy efforts